As I sit here and listen to my oldest daughter screaming her head off upstairs, I can only shudder. The past 2 1/2 weeks have been sheer hell. She is in a great deal of pain at times, and scared of more pain at other times. It breaks my heart. She doesn't have the words to say what's wrong, she can only look at me with her gorgeous, huge dark brown eyes with an expression that makes me want to cry as hard as she is. She spent all of last weekend in the most agony I've ever seen her in, due to severe constipation. Now she is terrified of having a BM and is holding it for all she's worth. I foresee weeks, months or even years of problems all from this one go-round of constipation. We have no way of making her understand that holding it only makes it worse. Her pediatrician is having us give her a substance called Miralax every day, although we can't get her to take it so far, and we can use glycerin suppositories as needed. I think she'll need one tonight, because the screaming right now is due to the fact that she needs to go but won't.
Add in the fact that her autism center is either closing or changing it's model drastically and I swear I'm about ready to give up. There was a really hurtful article in our local paper today about us "greedy" autism parents at my daughter's center. I guess I don't really feel like writing about it today after all. Suffice it to say my stomach is in knots and I will lie awake tonight feeling more anxiety than you can imagine over it all.
Well, I was going to write more but my little man is awake now. Seems the sound of my keyboard does that to him, lol. Be back later.
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2 comments:
Lisa, I clicked on your blog from MA's blog. I remember you from FF and I'm thrilled to see that you had your precious baby boy! He is beautiful. Congratulations.
I'm so sorry for what your daughter's going through right now. Poor darling. It must be awful for her, and you. I used Miralax after a surgery (the experience makes me want to cry for your girl) -- it might take a couple of doses to work, but it will help. It is totally tasteless and can be stirred into any drink without really changing it.
Anyway, just wanted to say hello. I'd wondered about you and when the baby came. Glad I clicked through.
Take care,
Lisa / "Olisa"
Lisa, I hope your daughter is feeling better and having less troubles with her BM's. It just sounds horrifying all the way around. Hugs,
Janet
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